Life after the diagnosis of melanoma 2014/2015
Single Wave Study
General Information
Title
Life after the diagnosis of melanoma 2014/2015
Project Number
4.1
Abstract
The questionnaire focuses on quality of life, complaints, social support and influence of cancer on patients who have been diagnosed with melanoma.
Longitudinal Type
Single Wave Study
Begin date
01-10-2014
End date
31-10-2015
Topics
Researcher
Lonneke van de Poll-Franse
Publisher
IKNL Profiles study
Copyright
Copyright IKNL Profiles study
Codebooks and other materials
View Documentation
Codebook in English
Variables
| Variable name | Variable Label | Variable Type |
|---|---|---|
| ml14a01pat_id | Patient identifier | constructed |
| ml14a01response | Response status | derived |
| ml14a01mode | Questionnaire filled in online or on paper | derived |
| ml14a01gend | Gender | preloaded |
| ml14a01ageinc | Age categories at time of diagnosis | constructed |
| ml14a01ageques | Age categories at time of questionnaire | constructed |
| ml14a01yrsdiag | Time since diagnosis in categories | constructed |
| ml14a01T_ses3 | Social economic status | preloaded |
| ml14a01tumor | Tumor | preloaded |
| ml14a01stage | Tumor stage | preloaded |
| ml14a01grade | Tumor differentation | preloaded |
| ml14a01sys | Treatment: Systematic‎ | preloaded |
| ml14a01hor | Treatment: Hormone | preloaded |
| ml14a01sur | Treatment: Surgery | preloaded |
| ml14a01rad | Treatment: Radiotherapy | preloaded |
| ml14a01oth | Treatment: Other | preloaded |
| ml14a01non | Treatment: None | preloaded |
| ml14a01unk | Treatment: Unknow | preloaded |
| ml14a02q01 | What is currently your marital status? | preloaded |
| ml14a02q02 | What is the highest level of education that you have completed? | directly measured |
| ml14a02q03 | Do you have a partner at this moment? | directly measured |
| ml14a06q01 | Do you have a paid job at the moment? | directly measured |
| ml14a06q01a | For how many hours per week are you employed? | directly measured |
| ml14a06q01b | For how many hours per week are you an entrepeneur? | directly measured |
| ml14a06q04 | How many weeks were you unable to work because of cancer? | directly measured |
| ml14a06q04a | Number of weeks unable to work | directly measured |
| ml14a06q07a | Nothing has changed | directly measured |
| ml14a06q07b | I have been retrained | directly measured |
| ml14a06q07c | I got another job due to cancer | directly measured |
| ml14a06q07d | I have quit working due to cancer | directly measured |
| ml14a06q07e | I am working more hours due to cancer | directly measured |
| ml14a06q07f | I am working less hours due to cancer | directly measured |
| ml14a06q07g | I am disabled due to cancer | directly measured |
| ml14a06q07h | I have retired early | directly measured |
| ml14a06q07i | I have been fired due to cancer | directly measured |
| ml14a06q07e1 | Number of hours more working | directly measured |
| ml14a06q07f1 | Number of hours less working | directly measured |
| ml14a07q01 | Heart condition | directly measured |
| ml14a07q04 | Stroke | directly measured |
| ml14a07q07 | High blood pressure | directly measured |
| ml14a07q10 | Asthma, chronic bronchitis, COPD | directly measured |
| ml14a07q13 | Diabetes | directly measured |
| ml14a07q16 | Ulcer | directly measured |
| ml14a07q19 | Kidney disease | directly measured |
| ml14a07q22 | Liver disease | directly measured |
| ml14a07q25 | Anemia / other blood condition | directly measured |
| ml14a07q28 | Thyroid disease | directly measured |
| ml14a07q31 | Depression | directly measured |
| ml14a07q34 | Arthritis | directly measured |
| ml14a07q37 | Backache | directly measured |
| ml14a07q40 | Rheumatism | directly measured |
| ml14a07q41 | Another medical issue | directly measured |
| ml14a09q01 | Trouble doing strenous activities | directly measured |
| ml14a09q02 | Trouble taking a long walk | directly measured |
| ml14a09q03 | Trouble taking a short walk outside of the house | directly measured |
| ml14a09q04 | Need to stay in bed or chair | directly measured |
| ml14a09q05 | Need help eating, dressing, washing, toilet | directly measured |
| ml14a09q06 | Limited in doing work or daily activities | directly measured |
| ml14a09q07 | Limited in pursuing hobbies | directly measured |
| ml14a09q08 | Short of breath | directly measured |
| ml14a09q09 | Have had pain | directly measured |
| ml14a09q10 | Need to rest | directly measured |
| ml14a09q11 | Trouble sleeping | directly measured |
| ml14a09q12 | Felt weak | directly measured |
| ml14a09q13 | Lacked appetite | directly measured |
| ml14a09q14 | Felt nauseated | directly measured |
| ml14a09q15 | Vomited | directly measured |
| ml14a09q16 | Been constipated | directly measured |
| ml14a09q17 | Had diarrhea | directly measured |
| ml14a09q18 | Tired | directly measured |
| ml14a09q19 | Pain interefered with daily activities | directly measured |
| ml14a09q20 | Difficulty concentrating | directly measured |
| ml14a09q21 | Tense | directly measured |
| ml14a09q22 | Worry | directly measured |
| ml14a09q23 | Feel irritable | directly measured |
| ml14a09q24 | Feel depressed | directly measured |
| ml14a09q25 | Difficulty remembering things | directly measured |
| ml14a09q26 | Interfered with family life | directly measured |
| ml14a09q27 | Interfered with social activities | directly measured |
| ml14a09q28 | Caused financial difficulties | directly measured |
| ml14a09q29 | Rate overall health | directly measured |
| ml14a09q30 | Rate quality of life | directly measured |
| ml14a09S01 | Global health scale | directly measured |
| ml14a09S02 | Physical functioning scale | directly measured |
| ml14a09S03 | Role functioning scale | directly measured |
| ml14a09S04 | Emotional functioning scale | directly measured |
| ml14a09S05 | Cognitive functioning scale | directly measured |
| ml14a09S06 | Social functioning scale | directly measured |
| ml14a09S07 | Fatigue scale | directly measured |
| ml14a09S08 | Nausea / Vomiting scale | directly measured |
| ml14a09S09 | Pain scale | directly measured |
| ml14a09S10 | Dyspnoea scale | directly measured |
| ml14a09S11 | Insomnia scale | directly measured |
| ml14a09S12 | Appetite loss scale | directly measured |
| ml14a09S13 | Constipation scale | directly measured |
| ml14a09S14 | Diarhoea scale | directly measured |
| ml14a09S15 | Financial problems scale | directly measured |
| ml14a25q01 | Unsure about future | directly measured |
| ml14a25q02 | Time is running out | directly measured |
| ml14a25q03 | Worry about cancer coming back | directly measured |
| ml14a25q04 | Concerned about my health | directly measured |
| ml14a25q05 | Worry about future | directly measured |
| ml14a25q06 | Worry about new symptoms | directly measured |
| ml14a25q07 | Worry about health | directly measured |
| ml14a50q01 | Special person when in need | directly measured |
| ml14a50q02 | Special person for joys and sorrows | directly measured |
| ml14a50q03 | Family tries to help me | directly measured |
| ml14a50q04 | Emotional help and support | directly measured |
| ml14a50q05 | Source of comfort | directly measured |
| ml14a50q06 | Friends try to help me | directly measured |
| ml14a50q07 | Count on friends | directly measured |
| ml14a50q08 | Talk about problems with family | directly measured |
| ml14a50q09 | Friends for joys and sorrows | directly measured |
| ml14a50q10 | Special person who cares | directly measured |
| ml14a50q11 | Family helps to make decisions | directly measured |
| ml14a50q12 | Talk about problems with friends | directly measured |
| ml14a50S01 | Scale of perceived social support | constructed |
Questions
Questionnaire: Life after the diagnosis of melanoma
The questionnaire was originally conducted in Dutch.
Browse Life after the diagnosis of melanomaResponse Information
Response Overview
The questionnaire was submitted to 367 patients of 18 years and older. A total of 244 patients completed the questionnaire (response rate 66%).Collection Events
Period
01-10-2014 to 31-10-2015
Sample
Patients diagnosed with melanoma between 2007 and 2013 in the southern region of the Netherlands
Collection Mode
Mixed-mode survey
Fieldwork Note
A reminder was sent once to non-respondents.