Quality of life colon/rectal cancer 2010-2014 > Quality of life colon/rectal cancer 2013b

Longitudinal Wave

General Information

Title

Quality of life colon/rectal cancer 2013b

Project Number

2.1e

Abstract

In 2013 a questionnaire has been composed treating the subjects lifestyle, health related quality of life, health complaints, personality, fatigue, anxiety and depression after the diagnosis colon or rectal cancer. This was the fifth wave in a longitudinal study

Longitudinal Type

Longitudinal Wave

Begin date

23-01-2014

End date

31-05-2014

Researcher

Floortje Mols

Publisher

IKNL Profiles study

Codebooks and other materials

View Documentation

Codebook in English

cr13b_EN_1.0

Variables

Variable name	Variable Label	Variable Type
cr13b01pat_id	Patient identifier	preloaded
cr13b01respons	Response status	derived
cr13a01tumor	Tumor	preloaded
cr13b01stadkort	Stage of disease	preloaded
cr13b01grade	Grade of tumor	preloaded
cr13b01ageinc	Age category at time of diagnosis	constructed
cr13b01ageques	Age category at time of study	constructed
cr13b01yrsdiag	Time since diagnosis in categories	constructed
cr13b01BMI	Body Mass Index	derived
cr13b01treat	Primary treatment	preloaded
cr13b01t_ses3	Social Economic Status	preloaded
cr13b01gend	Gender	preloaded
cr13b01mode	Mode	derived
cr13b02q01	What is currently your marital status?	directly measured
cr13b02q02	What is the highest education level that you have completed?	directly measured
cr13b06q01	Do you have a paid job at this moment?	directly measured
cr13b06q02	Paid job as hours/week as employee	directly measured
cr13b06q03	Paid job as hours/week as entrepeneur	directly measured
cr13b06q04	If you do not have a paid job, which of the following reasons is most applicable to your situation?	directly measured
cr13b06q09	Due to cancer	directly measured
cr13b03q01	Do you smoke?	directly measured
cr13b03q02	How long have you quit smoking for?	directly measured
cr13b03q03	Number of cigarettes a day	directly measured
cr13b03q04	Number of cigars a day	directly measured
cr13b03q05	Number of packages of pipe tabacco a week	directly measured
cr13b03q06	Do you drink alcohol?	directly measured
cr13b03q07	How long have you stopped drinking alcohol for?	directly measured
cr13b03q08	Number of glasses of beer per week	directly measured
cr13b03q09	Number of glasses of wine or port wine per week	directly measured
cr13b03q10	Number of glasses of liquor per week	directly measured
cr13b04q01	Going for a walk in the summer (also walking to work, shopping, and walking in leisure time)	directly measured
cr13b04q02	Going for a walk in the winter (also walking to work, shopping, and walking in leisure time)	directly measured
cr13b04q03	Riding a bike in the summer (also riding a bike to work, shopping, and cycling in leisure time)	directly measured
cr13b04q04	Riding a bike in the winter (also riding a bike to work, shopping, and cycling in leisure time)	directly measured
cr13b04q05	Gardening in the summer	directly measured
cr13b04q06	Gardening in the winter	directly measured
cr13b04q07	Keeping house in the summer (for example laundry, cleaning, cooking, taking care of children)	directly measured
cr13b04q08	Keeping house in the winter (for example laundry, cleaning, cooking, taking care of children)	directly measured
cr13b04q09	Have you done weekly sporting activities in the past year?	directly measured
cr13b05q01	How many times did you have contact with your general practitioner in the past 12 months?	directly measured
cr13b05q02	How many of these contact moments had to do with cancer or the aftermath of cancer?	directly measured
cr13b05q03	How many times did you have contact with your specialist in the past 12 months?	directly measured
cr13b05q04	How many of these contact moments had to do with cancer or the aftermath of cancer?	directly measured
cr13b05q05	Do you still have follow up appointments?	directly measured
cr13b05q06	Did you discuss with your specialist how often you have to come back from this moment on?	directly measured
cr13b05q07	Do you feel comfortable with this follow up scheme?	directly measured
cr13b05q08	Did you receive care after the treatment of your illness?	directly measured
cr13b05q09	Did you receive care after the treatment of your illness from a psychologist?	directly measured
cr13b05q10	Did you receive care after the treatment of your illness from a sexologist?	directly measured
cr13b05q11	Did you receive care after the treatment of your illness from a social worker?	directly measured
cr13b05q12	Did you receive care after the treatment of your illness from pastoral care?	directly measured
cr13b05q13	Did you receive care after the treatment of your illness from a general practitioner?	directly measured
cr13b05q14	Did you receive care after the treatment of your illness from a dietist?	directly measured
cr13b05q15	Did you receive care after the treatment of your illness from a physiotherapist?	directly measured
cr13b05q16	Did you receive care after the treatment of your illness from Recovery and Balance (recovery program)?	directly measured
cr13b05q17	Did you receive care after the treatment of your illness from creative therapy?	directly measured
cr13b05q18	Did you receive care after the treatment of your illness from a oncological nurse?	directly measured
cr13b05q19	Did you receive care after the treatment of your illness from a peer group	directly measured
cr13b05q20	Did you receive care after the treatment of your illness from home care?	directly measured
cr13b05q21	Did you receive care after the treatment of your illness from someone else?	directly measured
cr13b07q01	Do you have now, or did you have in the past 12 months: heart condition	directly measured
cr13b07q02	Do you have now, or did you have in the past 12 months: stroke	directly measured
cr13b07q03	Do you have now, or did you have in the past 12 months: high blood pressure	directly measured
cr13b07q04	Do you have now, or did you have in the past 12 months: asthma, chronic bronchitis, COPD	directly measured
cr13b07q05	Do you have now, or did you have in the past 12 months: diabetes	directly measured
cr13b07q06	Do you have now, or did you have in the past 12 months: ulcer	directly measured
cr13b07q07	Do you have now, or did you have in the past 12 months: kidney disease	directly measured
cr13b07q08	Do you have now, or did you have in the past 12 months: liver disease	directly measured
cr13b07q09	Do you have now, or did you have in the past 12 months: anemia or other blood condition	directly measured
cr13b07q10	Do you have now, or did you have in the past 12 months: thyroid disease	directly measured
cr13b07q11	Do you have now, or did you have in the past 12 months: depression	directly measured
cr13b07q12	Do you have now, or did you have in the past 12 months: arthritis	directly measured
cr13b07q13	Do you have now, or did you have in the past 12 months: backache	directly measured
cr13b07q14	Do you have now, or did you have in the past 12 months: rheumatism	directly measured
cr13b09q01	Do you have any trouble doing strenuous activities, like carrying a heavy shopping bag or a suitcase?	directly measured
cr13b09q02	Do you have any trouble taking a long walk?	directly measured
cr13b09q03	Do you have any trouble taking a short walk outside of the house?	directly measured
cr13b09q04	Do you need to stay in bed or a chair during the day?	directly measured
cr13b09q05	Do you need help with eating, dressing, washing yourself or using the toilet?	directly measured
cr13b09q06	During the past week: Were you limited in doing either your work or other daily activities?	directly measured
cr13b09q07	During the past week: Were you limited in pursuing your hobbies or other leisure time activities?	directly measured
cr13b09q08	During the past week: Were you short of breath?	directly measured
cr13b09q09	During the past week: Have you had pain?	directly measured
cr13b09q10	During the past week: Did you need to rest?	directly measured
cr13b09q11	During the past week: Have you had trouble sleeping?	directly measured
cr13b09q12	During the past week: Have you felt weak?	directly measured
cr13b09q13	During the past week: Have you lacked appetite?	directly measured
cr13b09q14	During the past week: Have you felt nauseated?	directly measured
cr13b09q15	During the past week: Have you vomited?	directly measured
cr13b09q16	During the past week: Have you been constipated?	directly measured
cr13b09q17	During the past week: Have you had diarrhea?	directly measured
cr13b09q18	During the past week: Were you tired?	directly measured
cr13b09q19	During the past week: Did pain interfere with your daily activities?	directly measured
cr13b09q20	During the past week: Have you had difficulty in concentrating on things, like reading a newspaper or watching televisio	directly measured
cr13b09q21	During the past week: Did you feel tense?	directly measured
cr13b09q22	During the past week: Did you worry?	directly measured
cr13b09q23	During the past week: Did you feel irritable?	directly measured
cr13b09q24	During the past week: Did you feel depressed?	directly measured
cr13b09q25	During the past week: Have you had difficulty remembering things?	directly measured
cr13b09q26	During the past week: Has your physical condition or medical treatment interfered with your family life?	directly measured
cr13b09q27	During the past week: Has your physical condition or medical treatment interfered with your social activities?	directly measured
cr13b09q28	During the past week: Has your physical condition or medical treatment caused you financial difficulties?	directly measured
cr13b09q29	How would you rate your overall health during the past week?	directly measured
cr13b09q30	How would you rate your overall quality of life during the past week?	directly measured
cr13b09s01	Global health status / QoL	derived
cr13b09s02	Physical Functioning	derived
cr13b09s03	Role Functioning	derived
cr13b09s04	Emotional Functioning	derived
cr13b09s05	Cognitive Functioning	derived
cr13b09s06	Social Functioning	derived
cr13b09s07	Fatigue	derived
cr13b09s08	Nausea / Vomiting	derived
cr13b09s09	Pain	derived
cr13b09s10	Dyspnoea	derived
cr13b09s11	Insomnia	derived
cr13b09s12	Appetite loss	derived
cr13b09s13	Constipation	derived
cr13b09s14	Diarhoea	derived
cr13b09s15	Financial Problems	derived
cr13b10q01	During the past week: Did you urinate frequently during the day?	directly measured
cr13b10q02	During the past week: Did you urinate frequently during the night?	directly measured
cr13b10q03	During the past week: Did you have pain when you urinated?	directly measured
cr13b10q04	During the past week: Did you have a bloated feeling in your abdomen?	directly measured
cr13b10q05	During the past week: Did you have abdominal pain?	directly measured
cr13b10q06	During the past week: Did you have pain in your buttocks?	directly measured
cr13b10q07	During the past week: Did you suffer from gas (flatulence)?	directly measured
cr13b10q08	During the past week: Did you have indigestions?	directly measured
cr13b10q09	During the past week: Have you lost weight?	directly measured
cr13b10q10	During the past week: Did you have a dry mouth?	directly measured
cr13b10q11	During the past week: Have you had thin or dull hair because of your illness or treatment?	directly measured
cr13b10q12	During the past week: Did food and drink tast different than usual?	directly measured
cr13b10q13	During the past week: Have you felt physically less attractive as a result of your disease or treatment?	directly measured
cr13b10q14	During the past week: Have you been feeling less feminine/masculine as a result of your disease or treatment?	directly measured
cr13b10q15	During the past week: Have you been dissatisfied with your body?	directly measured
cr13b10q16	During the past week: Were you worried about your health in the future?	directly measured
cr13b10q17	To what extent were you interested in sex?	directly measured
cr13b10q18	To what extent were you sexually active (with or without intercourse)?	directly measured
cr13b10q19	Answer only if you were sexually active: To what extent was sex enjoyable for you?	directly measured
cr13b10q20	Did you have difficulty getting an erection?	directly measured
cr13b10q21	Did you have any trouble getting an ejaculation (e.g. so-called dry orgasm)?	directly measured
cr13b10q22	Did you have a dry vagina during intercourse?	directly measured
cr13b10q23	Did you have pain during intercourse?	directly measured
cr13b10q24	Do you have a stoma (colostomy bag)?	directly measured
cr13b10q25	During the past week: Were you afraid that other people would be able to hear your stoma?	directly measured
cr13b10q26	During the past week: Were you afraid that other people would be able to smell your stools?	directly measured
cr13b10q27	During the past week: Were you worried about possible leakage from the stoma bag?	directly measured
cr13b10q28	During the past week: Did you have problems with caring for your stoma?	directly measured
cr13b10q29	During the past week: Have you had sore skin around your stoma?	directly measured
cr13b10q30	During the past week: Did you feel embarassed because of your stoma?	directly measured
cr13b10q31	During the past week: Did you feel less complete because of your stoma?	directly measured
cr13b10q42	Did frequent bag changes occur during the day?	directly measured
cr13b10q43	Did frequent bag changes occur during the night?	directly measured
cr13b10q32	During the past week: Did you have frequent bowel movements during the day?	directly measured
cr13b10q33	During the past week: Did you have frequent bowel movements during the night?	directly measured
cr13b10q34	During the past week: Have you had false urge (urge without defecation)?	directly measured
cr13b10q35	During the past week: Have you had leakage of stools from your back passage?	directly measured
cr13b10q36	During the past week: Have you had blood in your stools?	directly measured
cr13b10q37	During the past week: Do you have difficulties with defecating?	directly measured
cr13b10q38	During the past week: Do you have pain when defecating?	directly measured
cr13b10q45	Did you have slime/mucus in your stools?	directly measured
cr13b10q46	Have you had sore skin around your anal zone?	directly measured
cr12a10q47	Did you feel hampered by your bowel movement?	directly measured
cr13b10s01	Body image	derived
cr13b10s02	Future perspective	derived
cr13b10s03	Sexual functioning	derived
cr13b10s04	Sexual enjoyment	derived
cr13b10s05	Micturition problems	derived
cr13b10s06	Chemotherapy side effects	derived
cr13b10s07	Gastrointestinal problems	derived
cr13b10s08	Male-related sexual problems	derived
cr13b10s09	Female-related sexual problems	derived
cr13b10s10	Defecation problems	derived
cr13b10s11	Stoma-related problems	derived
cr13b10s12	Weight loss	derived
cr13b21q01	I make contact easily when I meet people.	directly measured
cr13b21q02	I often make a fuss about unimportant things.	directly measured
cr13b21q03	I often talk to strangers.	directly measured
cr13b21q04	I often feel unhappy	directly measured
cr13b21q05	I am often irritated.	directly measured
cr13b21q06	I often feel inhibited in social interactions.	directly measured
cr13b21q07	I take a gloomy view on things.	directly measured
cr13b21q08	I find it hard to start a conversation.	directly measured
cr13b21q09	I am often in a bad mood.	directly measured
cr13b21q10	I am a closed kind of person.	directly measured
cr13b21q11	I would rather keep other people at a distance.	directly measured
cr13b21q12	I often find myself worrying about something.	directly measured
cr13b21q13	I am often down in the dumps.	directly measured
cr13b21q14	When socializing, I donâ€™t find the right things to talk about.	directly measured
cr13b21s01	Negative affection	derived
cr13b21s02	Social inhibition	derived
cr13b21s03	Type D personality	derived
cr13b23q01	I am bothered by fatigue	directly measured
cr13b23q02	I get tired very quickly	directly measured
cr13b23q03	I donâ€™t do much during the day	directly measured
cr13b23q04	I have enough energy for everyday life	directly measured
cr13b23q05	Physically, I feel exhausted	directly measured
cr13b23q06	I have problems starting things	directly measured
cr13b23q07	I have problems thinking clearly	directly measured
cr13b23q08	I feel no desire to do anything	directly measured
cr13b23q09	Mentally, I feel exhausted	directly measured
cr13b23q10	When I am doing something, I can concentrate quite well	directly measured
cr13b23s01	FAS total score	derived
cr13b55q01	I feel fit	directly measured
cr13b55q02	Physically I feel only able to do a little	directly measured
cr13b55q03	I feel very active	directly measured
cr13b55q04	I feel like doing all sorts of nice things	directly measured
cr13b55q05	I feel tired	directly measured
cr13b55q06	I think I do a lot in a day	directly measured
cr13b55q07	When I am doing something, I can keep my thoughts on it	directly measured
cr13b55q08	Physically I can take on a lot	directly measured
cr13b55q09	I dread having to do things	directly measured
cr13b55q10	I think I do very little in a day	directly measured
cr13b55q11	I can concentrate well	directly measured
cr13b55q12	I am rested	directly measured
cr13b55q13	It takes a lot of effort to concentrate on things	directly measured
cr13b55q14	Physically I feel I am in bad condition	directly measured
cr13b55q15	I have a lot of plans	directly measured
cr13b55q16	I tire easily	directly measured
cr13b55q17	I get little done	directly measured
cr13b55q18	I donâ€™t feel like doing anything	directly measured
cr13b55q19	My thoughts easily wander	directly measured
cr13b55q20	Physically I feel I am in an excellent condition	directly measured
cr13b55s01	General fatique	derived
cr13b55s02	Physical fatique	derived
cr13b55s03	Reduced activity	derived
cr13b55s04	Reduced motivation	derived
cr13b55s05	Mental fatique	derived
cr13b24q01	I feel tense or 'wound' up	directly measured
cr13b24q02	I still enjoy the things I used to enjoy	directly measured
cr13b24q03	I get a sort of frightened feeling as if something awful is about to happen	directly measured
cr13b24q04	I can laugh and see the funny side of things	directly measured
cr13b24q05	Worrying thoughts go through my mind	directly measured
cr13b24q06	I feel cheerful	directly measured
cr13b24q07	I can sit at ease and feel relaxed	directly measured
cr13b24q08	I feel as if I am slowed down	directly measured
cr13b24q09	I get a sort of frightened feeling like 'butterflies' in the stomach	directly measured
cr13b24q10	I have lost interest in my appearance	directly measured
cr13b24q11	I feel restless, as if I have to be on the move	directly measured
cr13b24q12	I look forward with enjoyment to things	directly measured
cr13b24q13	I get sudden feelings of panic	directly measured
cr13b24q14	I can enjoy a good book or radio or TV program	directly measured
cr13b24s01	Anxiety total score	derived
cr13b24s02	Depression total score	derived
cr13b54q01a	During the past month, what time have you usually gone to bed at night? Hours	directly measured
cr13b54q01b	During the past month, what time have you usually gone to bed at night? Minutes	directly measured
cr13b54q02	During the past month, how long has it usually take you to fall asleep each night? Minutes	directly measured
cr13b54q03a	During the past month, what time have you usually gotten up in the morning? Hours	directly measured
cr13b54q03b	During the past month, what time have you usually gotten up in the morning? Minutes	directly measured
cr13b54q04	During the past month, how many hours of actual sleep did you get at night? Hours	directly measured
cr13b54q05a	During the past month, how often have you had trouble sleeping because you - Cannot get to sleep within 30 minutes	directly measured
cr13b54q05b	During the past month, how often have you had trouble sleeping because you - Wake up in the middle of the night or early morning	directly measured
cr13b54q05c	During the past month, how often have you had trouble sleeping because you - Have to get up to use the bathroom	directly measured
cr13b54q05d	During the past month, how often have you had trouble sleeping because you - Cannot breathe comfortably	directly measured
cr13b54q05e	During the past month, how often have you had trouble sleeping because you - Cough or snore loudly	directly measured
cr13b54q05f	During the past month, how often have you had trouble sleeping because you - Feel too cold	directly measured
cr13b54q05g	During the past month, how often have you had trouble sleeping because you - Feel too hot	directly measured
cr13b54q05h	During the past month, how often have you had trouble sleeping because you - Had bad dreams	directly measured
cr13b54q05i	During the past month, how often have you had trouble sleeping because you - Have pain	directly measured
cr13b54q05j	During the past month, how often have you had trouble sleeping because you - Other reason(s),	directly measured
cr13b54q06	During the past month, how would you rate your sleep quality overall?	directly measured
cr13b54q07	During the past month, how often have you taken medicine to help you sleep (prescribed or "over the counter")?	directly measured
cr13b54q08	During the past month, how often have you had trouble staying awake while driving, eating meals, or engaging in social activity?	directly measured
cr13b54q09	During the past month, how much of a problem has it been for you to keep up enough enthusiasm to get things done?	directly measured
cr13b54q10	Do you have a bed partner or room mate?	directly measured
cr13b54q11a	If you have a room mate or bed partner, ask him/her how often in the past month you have had - Loud snoring	directly measured
cr13b54q11b	If you have a room mate or bed partner, ask him/her how often in the past month you have had - Long pauses between breaths while asleep	directly measured
cr13b54q11c	If you have a room mate or bed partner, ask him/her how often in the past month you have had - Legs twitching or jerking while you sleep	directly measured
cr13b54q11d	If you have a room mate or bed partner, ask him/her how often in the past month you have had - Episodes of disorientation or confusion during sleep	directly measured
cr13b54q11e	If you have a room mate or bed partner, ask him/her how often in the past month you have had - Other restlessness while you sleep	directly measured
cr13b54s01	PSQI sleep quality	derived
cr13b54s02	PSQI sleep latency	derived
cr13b54s03	PSQI sleep duration	derived
cr13b54s04	PSQI habitual sleep efficiency	derived
cr13b54s05	PSQI sleep disturbance	derived
cr13b54s06	PSQI need medication to sleep	derived
cr13b54s07	PSQI day dysfunction due to sleepiness	derived
cr13b54s08	PSQI Total Score	derived
cr13b49q60	Do you believe that the (possible) complaints you (might) have, are caused by: colon cancer?	directly measured
cr13b49q61	Do you believe that the (possible) complaints you (might) have, are caused by: the treatment?	directly measured
cr13b49q62	Do you believe that the (possible) complaints you (might) have, are caused by: other causes?	directly measured

Questions

Questionnaire: cr13b

The questionnaire was originally conducted in Dutch.

Browse cr13b

Response Information

Response Overview

The questionnaire was submitted to 1.547 patients of 18 years and older. 1.246 patients completed the questionnaire (response rate 81%).

Collection Events

Period

23-01-2014 to 31-05-2014

Sample

Patients diagnosed with colon or rectal cancer between 2000 and 2009 in the southern region of the Netherlands.

Collection Mode

Mixed-mode survey

Fieldwork Note

A reminder was sent once to the non-respondents.