Quality of life colon/rectal cancer 2010-2014 > Quality of life colon/rectal cancer 2012

Longitudinal Wave

General Information

Title
Quality of life colon/rectal cancer 2012
Project Number
2.1c
Abstract
In 2012 a questionnaire has been composed treating the subjects lifestyle, health related quality of life, health complaints, personality, fatigue, anxiety and depression after the diagnosis colon or rectal cancer. This was the third wave in a longitudinal study.
Longitudinal Type
Longitudinal Wave
Begin date
01-11-2012
End date
10-02-2013
Researcher
Floortje Mols
Publisher
IKNL Profiles study
Copyright
Copyright IKNL Profiles study

Codebooks and other materials

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Codebook in English

Variables

Variable name Variable Label Variable Type
cr12a01pat_idPatient identifierpreloaded
cr12a01responseResponse statusderived
cr12a01tumorTumor (colon or rectal)preloaded
cr12a01stadkortStagepreloaded
cr12a01gradeGrade of tumorpreloaded
cr12a01ageincAge cateogry at time of diagnosisconstructed
cr12a01agequesAge category at time of studyconstructed
cr12a01yrsdiagTime since diagnosis in categoriesconstructed
cr12a01BMIBody Mass Indexconstructed
cr12a01treatTreatmentpreloaded
cr12a01t_ses3Social Economic Status status in 3(4) categoriespreloaded
cr12a01gendGenderpreloaded
cr12a01modeQuestionnaire filled in online or on paperderived
cr12a02q01What is currently your marital status?directly measured
cr12a02q02Wat is the highest education level that you have completed?directly measured
cr12a06q01Do you have a paid job at this moment?directly measured
cr12a06q02Hours/week working as employeedirectly measured
cr12a06q03Hours/week working as entrepeneurdirectly measured
cr12a06q06If you do not have a paid job, which of the following reasons is most applicable to your situation?directly measured
cr12a06q08Due to cancerdirectly measured
cr12a03q01Do you smoke?directly measured
cr11a03q02How long has it been since you've quit smoking?directly measured
cr12a03q03Number of cigarettes a daydirectly measured
cr12a03q04Number of cigars a daydirectly measured
cr12a03q05Number of packages of pipe tabacco a weekdirectly measured
cr12a03q06Do you drink alcohol?directly measured
cr12a03q07How long has it been since you've quit drinking alcohol?directly measured
cr12a03q08Number of glasses of beer per weekdirectly measured
cr12a03q09Number of glasses of wine or port wine per weekdirectly measured
cr12a03q10Number of glasses of liquor per weekdirectly measured
cr12a49q01I would like to eat healthier than I eat nowdirectly measured
cr12a49q02I feel the need for support to eat healthierdirectly measured
cr12a49q03I have previously tried to eat healthierdirectly measured
cr12a49q04It has been succesful before for me to eat healthier and keep this updirectly measured
cr12a49q05Do you currently follow a particular regimen when eating (e.g. vegetarian, vegan, just fish or biological, or do you foldirectly measured
cr12a04q01Average amount of hours per week going for walks in the summerdirectly measured
cr12a04q02Average amount of hours per week going for walks in the winterdirectly measured
cr12a04q03Average amount of hours per week going for bike rides in the summerdirectly measured
cr12a04q04Average amount of hours per week going for bike rides in the winterdirectly measured
cr12a04q05Average amount of hours per week spending on gardening in the summerdirectly measured
cr12a04q06Average amount of hours per week spending on gardening in the winterdirectly measured
cr12a04q07Average amount of hours per week spending on keeping house in the summerdirectly measured
cr12a04q08Average amount of hours per week spending on keeping house in the winterdirectly measured
cr12a04q09Have you done weekly sporting activities in the past year?directly measured
cr12a05q01How many times did you have contact with your general practitioner in the past 12 months?directly measured
cr12a05q02How many of these contact moments had to do with cancer or the aftermath of cancer?directly measured
cr12a05q03How many times did you have contact with your specialist in the past 12 months?directly measured
cr12a05q04How many of these contact moments had to do with cancer or the aftermath of cancer?directly measured
cr12a05q05Do you still have follow up appointments?directly measured
cr12a05q06Did you discuss with your specialist how often you have to come back from this moment on?directly measured
cr12a05q07Do you feel comfortable with this follow up scheme?directly measured
cr12a05q08Did you receive care after the treatment of your illness?directly measured
cr12a05q09Did you receive care after the treatment of your illness from a psychologist?directly measured
cr12a05q10Did you receive care after the treatment of your illness from a sexologist?directly measured
cr12a05q11Did you receive care after the treatment of your illness from a social worker?directly measured
cr12a05q12Did you receive care after the treatment of your illness from pastoral care?directly measured
cr12a05q13Did you receive care after the treatment of your illness from a general practitioner?directly measured
cr12a05q14Did you receive care after the treatment of your illness from a dietist?directly measured
cr12a05q15Did you receive care after the treatment of your illness from a physiotherapist?directly measured
cr12a05q16Did you receive care after the treatment of your illness from Recovery and Balance (recovery program)directly measured
cr12a05q17Did you receive care after the treatment of your illness from creative therapy?directly measured
cr12a05q18Did you receive care after the treatment of your illness from a oncological nurse?directly measured
cr12a05q19Did you receive care after the treatment of your illness from a peer groupdirectly measured
cr12a05q20Did you receive care after the treatment of your illness from home care?directly measured
cr12a05q21Did you receive care after the treatment of your illness from someone else?directly measured
cr12a07q01Do you have now, or did you have in the past 12 months: heart conditiondirectly measured
cr12a07q15Are you being treated for: heart conditiondirectly measured
cr12a07q29Does the condition interfere with your activities: heart condtiondirectly measured
cr12a07q02Do you have now, or did you have in the past 12 months: strokedirectly measured
cr12a07q16Are you being treated for: strokedirectly measured
cr12a07q30Does the condition interfere with your activities: strokedirectly measured
cr12a07q03Do you have now, or did you have in the past 12 months: high blood pressuredirectly measured
cr12a07q17Are you being treated for: high blood pressuredirectly measured
cr12a07q31Does the condition interfere with your activities: high blood pressuredirectly measured
cr12a07q04Do you have now, or did you have in the past 12 months: asthma, chronic bronchitis, COPDdirectly measured
cr12a07q18Are you being treated for: asthma, chronic bronchitis, COPDdirectly measured
cr12a07q32Does the condition interfere with your activities: asthma, chronic bronchitis, COPDdirectly measured
cr12a07q05Do you have now, or did you have in the past 12 months: diabetesdirectly measured
cr12a07q19Are you being treated for: diabetesdirectly measured
cr12a07q33Does the condition interfere with your activities: diabetesdirectly measured
cr12a07q06Do you have now, or did you have in the past 12 months: ulcerdirectly measured
cr12a07q20Are you being treated for: ulcerdirectly measured
cr12a07q34Does the condition interfere with your activities: ulcerdirectly measured
cr12a07q07Do you have now, or did you have in the past 12 months: kidney diseasedirectly measured
cr12a07q21Are you being treated for: kidney diseasedirectly measured
cr12a07q35Does the condition interfere with your activities: kidney diseasedirectly measured
cr12a07q08Do you have now, or did you have in the past 12 months: liver diseasedirectly measured
cr12a07q22Are you being treated for: liver diseasedirectly measured
cr12a07q36Does the condition interfere with your activities: liver diseasedirectly measured
cr12a07q09Do you have now, or did you have in the past 12 months: anemia or other blood conditiondirectly measured
cr12a07q23Are you being treated for: anemia or other blood conditiondirectly measured
cr12a07q37Does the condition interfere with your activities: anemia or other blood conditiondirectly measured
cr12a07q10Do you have now, or did you have in the past 12 months: thyroid diseasedirectly measured
cr12a07q24Are you being treated for: thyroid diseasedirectly measured
cr12a07q38Does the condition interfere with your activities: thyriod diseasedirectly measured
cr12a07q11Do you have now, or did you have in the past 12 months: depressiondirectly measured
cr12a07q25Are you being treated for: depressiondirectly measured
cr12a07q39Does the condition interfere with your activities: depressiondirectly measured
cr12a07q12Do you have now, or did you have in the past 12 months: arthritisdirectly measured
cr12a07q26Are you being treated for: arthritisdirectly measured
cr12a07q40Does the condition interfere with your activities: arthritisdirectly measured
cr12a07q13Do you have now, or did you have in the past 12 months: backachedirectly measured
cr12a07q27Are you being treated for: backachedirectly measured
cr12a07q41Does the condition interfere with your activities: backachedirectly measured
cr12a07q14Do you have now, or did you have in the past 12 months: rheumatismdirectly measured
cr12a07q28Are you being treated for: rheumatismdirectly measured
cr12a07q42Does the condition interfere with your activities: rheumatismdirectly measured
cr12a07qs1Comorbidity totalderived
cr12a07qs2Comorbidityderived
cr12a09q01Do you have any trouble doing strenuous activities, like carrying a heavy shopping bag or a suitcasedirectly measured
cr12a09q02Do you have any trouble taking a long walk?directly measured
cr12a09q03Do you have any trouble taking a short walk outside of the house?directly measured
cr12a09q04Do you need to stay in bed or a chair during the day?directly measured
cr12a09q05Do you need help with eating, dressing, washing yourself or using the toilet?directly measured
cr12a09q06During the past week: Were you limited in doing either your work or other daily activities?directly measured
cr12a09q07During the past week: Were you limited in pursuing your hobbies or other leisure time activities?directly measured
cr12a09q08During the past week: Were you short of breath?directly measured
cr12a09q09During the past week: Have you had pain?directly measured
cr12a09q10During the past week: Did you need to rest?directly measured
cr12a09q11During the past week: Have you had trouble sleeping?directly measured
cr12a09q12During the past week: Have you felt weak?directly measured
cr12a09q13During the past week: Have you lacked appetite?directly measured
cr12a09q14During the past week: Have you felt nauseated?directly measured
cr12a09q15During the past week: Have you vomited?directly measured
cr12a09q16During the past week: Have you been constipated?directly measured
cr12a09q17During the past week: Have you had diarrhea?directly measured
cr12a09q18During the past week: Were you tired?directly measured
cr12a09q19During the past week: Did pain interfere with your daily activities?directly measured
cr12a09q20During the past week: Have you had difficulty in concentrating on things, like reading a newspaper or watching televisiondirectly measured
cr12a09q21During the past week: Did you feel tense?directly measured
cr12a09q22During the past week: Did you worry?directly measured
cr12a09q23During the past week: Did you feel irritable?directly measured
cr12a09q24During the past week: Did you feel depressed?directly measured
cr12a09q25During the past week: Have you had difficulty remembering things?directly measured
cr12a09q26During the past week: Has your physical condition or medical treatment interfered with your family life?directly measured
cr12a09q27During the past week: Has your physical condition or medical treatment interfered with your social activities?directly measured
cr12a09q28During the past week: Has your physical condition or medical treatment caused you financial difficulties?directly measured
cr12a09q29How would you rate your overall health during the past week?directly measured
cr12a09q30How would you rate your overall quality of life during the past week?directly measured
cr12a09s01Physical Functioningderived
cr12a09s02Role Functioningderived
cr12a09s03Emotional Functioningderived
cr12a09s04Cognitive Functioningderived
cr12a09s05Social Functioningderived
cr12a09s06Global health status / QoLderived
cr12a09s07Fatiguederived
cr12a09s08Nausea / Vomitingderived
cr12a09s10Dyspnoeaderived
cr12a09s11Insomniaderived
cr12a09s12Appetite lossderived
cr12a09s13Constipationderived
cr12a09s14Diarhoeaderived
cr12a09s15Financial Problemsderived
cr12a10q01During the past week: Did you urinate frequently during the day?directly measured
cr12a10q02During the past week: Did you urinate frequently during the night?directly measured
cr12a10q03During the past week: Did you have pain when you urinated?directly measured
cr12a10q04During the past week: Did you have a bloated feeling in your abdomen?directly measured
cr12a10q05During the past week: Did you have abdominal pain?directly measured
cr12a10q06During the past week: Did you have pain in your buttocks?directly measured
cr12a10q07During the past week: Did you suffer from gas (flatulence)?directly measured
cr12a10q08During the past week: Did you have indigestions?directly measured
cr12a10q09During the past week: Have you lost weight?directly measured
cr12a10q10During the past week: Did you have a dry mouth?directly measured
cr12a10q11During the past week: Have you had thin or dull hair because of your illness or treatment?directly measured
cr12a10q12During the past week: Did food and drink taste different than usual?directly measured
cr12a10q13During the past week: Have you felt physically less attractive as a result of your disease or treatment?directly measured
cr12a10q14During the past week: Have you been feeling less feminine/masculine as a result of your disease or treatment?directly measured
cr12a10q15During the past week: Have you been dissatisfied with your body?directly measured
cr12a10q16During the past week: Were you worried about your health in the future?directly measured
cr12a10q17To what extent were you interested in sex?directly measured
cr12a10q18To what extent were you sexually active (with or without intercourse)?directly measured
cr12a10q19Answer only if you were sexually active: To what extent was sex enjoyable for you?directly measured
cr12a10q20Did you have difficulty getting an erection?directly measured
cr12a10q21Did you have any trouble getting an ejaculation (e.g. so-called dry orgasm)?directly measured
cr12a10q22Did you have a dry vagina during intercourse?directly measured
cr12a10q23Did you have pain during intercourse?directly measured
cr12a10q24Do you have a stoma (colostomy bag)?directly measured
cr12a10q25During the past week: Were you afraid that other people would be able to hear your stoma?directly measured
cr12a10q26During the past week: Were you afraid that other people would be able to smell your stools?directly measured
cr12a10q27During the past week: Were you worried about possible leakage from the stoma bag?directly measured
cr12a10q28During the past week: Did you have problems with caring for your stoma?directly measured
cr12a10q29During the past week:Was your skin around the stoma irritated?directly measured
cr12a10q30During the past week: Did you feel embarassed because of your stoma?directly measured
cr12a10q31During the past week: Did you feel less complete because of your stoma?directly measured
cr12a10q32During the past week: Did you have frequent bowel movements during the day?directly measured
cr12a10q33During the past week: Did you have frequent bowel movements during the night?directly measured
cr12a10q34During the past week: Have you had false urge (urge without defecation)?directly measured
cr12a10q35During the past week: Have you had any unintentional release of stools?directly measured
cr12a10q36During the past week: Have you had blood with your stools?directly measured
cr12a10q37During the past week: Do you have difficulties with defecating?directly measured
cr12a10q38During the past week: Do you have pain when defecating?directly measured
cr12a10q42Did frequent bag changes occur during the day?directly measured
cr12a10q43Did frequent bag changes occur during the night?directly measured
cr12a10q45Did you have slime/mucus in your stools?directly measured
cr12a10q46Have you had sore skin around your anal zone?directly measured
cr12a10q47Did you feel hampered by your bowel movement?directly measured
cr12a10s01Body imagederived
cr12a10s02Future perspectivederived
cr12a10s03Sexual functioningderived
cr12a10s04Sexual enjoymentderived
cr12a10s05Micturition problemsderived
cr12a10s06Chemotherapy side effectsderived
cr12a10s07Gastrointestinal problemsderived
cr12a10s08Male sexual problemsderived
cr12a10s09Female sexual problemsderived
cr12a10s10Defecation problemsderived
cr12a10s11Stoma-related problemsderived
cr12a10s12Weight lossderived
cr12a21q01I make contact easily when I meet people.directly measured
cr12a21q02I often make a fuss about unimportant things.directly measured
cr12a21q03I often talk to strangers.directly measured
cr12a21q04I often feel unhappydirectly measured
cr12a21q05I am often irritated.directly measured
cr12a21q06I often feel inhibited in social interactions.directly measured
cr12a21q07I take a gloomy view on things.directly measured
cr12a21q08I find it hard to start a conversation.directly measured
cr12a21q09I am often in a bad mood.directly measured
cr12a21q10I am a closed kind of person.directly measured
cr12a21q11I would rather keep other people at a distance.directly measured
cr12a21q12I often find myself worrying about something.directly measured
cr12a21q13I am often down in the dumps.directly measured
cr12a21q14When socializing, I don’t find the right things to talk about.directly measured
cr12a21s01Negative affectionderived
cr12a21s02Social inhibitionderived
cr12a21s03Type d personalityderived
cr12a23q01I am bothered by fatiguedirectly measured
cr12a23q02I get tired very quicklydirectly measured
cr12a23q03I don’t do much during the daydirectly measured
cr12a23q04I have enough energy for everyday lifedirectly measured
cr12a23q05Physically, I feel exhausteddirectly measured
cr12a23q06I have problems starting thingsdirectly measured
cr12a23q07I have problems thinking clearlydirectly measured
cr12a23q08I feel no desire to do anythingdirectly measured
cr12a23q09Mentally, I feel exhausteddirectly measured
cr12a23q10When I am doing something, I can concentrate quite welldirectly measured
cr12a23s03FAS totalderived
cr12a24q01I feel tense or 'wound' updirectly measured
cr12a24q02I still enjoy the things I used to enjoydirectly measured
cr12a24q03I get a sort of frightened feeling as if something awful is about to happendirectly measured
cr12a24q04I can laugh and see the funny side of thingsdirectly measured
cr12a24q05Worrying thoughts go through my minddirectly measured
cr12a24q06I feel cheerfuldirectly measured
cr12a24q07I can sit at ease and feel relaxeddirectly measured
cr12a24q08I feel as if I am slowed downdirectly measured
cr12a24q09I get a sort of frightened feeling like 'butterflies' in the stomachdirectly measured
cr12a24q10I have lost interest in my appearancedirectly measured
cr12a24q11I feel restless, as if I have to be on the movedirectly measured
cr12a24q12I look forward with enjoyment to thingsdirectly measured
cr12a24q13I get sudden feelings of panicdirectly measured
cr12a24q14I can enjoy a good book or radio or TV programdirectly measured
cr12a24s01HADS anxietyderived
cr12a24s02HADS depressionderived
cr12a44q01How much have your symptoms interfered with your general activity in the last week?directly measured
cr12a44q02How much have your symptoms interfered with your mood in the last week?directly measured
cr12a44q03How much have your symptoms interfered with your work (including work around the house) in the last week?directly measured
cr12a44q04How much have your symptoms interfered with your relations with other people in the last week?directly measured
cr12a44q05How much have your symptoms interfered with your walking in the last week?directly measured
cr12a44q06How much have your symptoms interfered with your enjoyment of life in the last week?directly measured
cr12a49q07Have you changed your diet since you heard you have (or had) cancer?directly measured
cr12a49q21Did you start using this more or less since the diagnosis cancer: fat?directly measured
cr12a49q22Did you start using this more or less since the diagnosis cancer: meat?directly measured
cr12a49q23Did you start using this more or less since the diagnosis cancer: fish?directly measured
cr12a49q24Did you start using this more or less since the diagnosis cancer: vegetables?directly measured
cr12a49q25Did you start using this more or less since the diagnosis cancer: fruit?directly measured
cr12a49q26Did you start using this more or less since the diagnosis cancer: milk and other dairy products?directly measured
cr12a49q27Did you start using this more or less since the diagnosis cancer: fiber, whole grain products?directly measured
cr12a49q28Did you start using this more or less since the diagnosis cancer: sugardirectly measured
cr12a49q29Did you start using this more or less since the diagnosis cancer: alcohol?directly measured
cr12a49q30Did you start using this more or less since the diagnosis cancer: water?directly measured
cr12a49q31Did you start using this more or less since the diagnosis cancer: salt?directly measured
cr12a49q32Did you start using this more or less since the diagnosis cancer: other?directly measured
cr12a49q33Are you currently using nutritional supplements (e.g. magnesium or vitamin tablets)?directly measured
cr12a49q34You are currently not using nutritional supplements (e.g. magnesium or vitamin tablets)?directly measured
cr12a49q43Since when are you using (from before or after the diagnosis cancer): vitamin C?directly measured
cr12a49q44Since when are you using (from before or after the diagnosis cancer): vitamin D?directly measured
cr12a49q45Since when are you using (from before or after the diagnosis cancer): magnesium?directly measured
cr12a49q46Since when are you using (from before or after the diagnosis cancer): fish oil?directly measured
cr12a49q47Since when are you using (from before or after the diagnosis cancer): multivitamins/minerals?directly measured
cr12a49q48Since when are you using (from before or after the diagnosis cancer): glucosamine (Chondroitin)?directly measured
cr12a49q49Since when are you using (from before or after the diagnosis cancer): other?directly measured
cr12a49q50aDid your diet change because of complaints concerning the diagnosis cancer?directly measured
cr12a49q50bDid you start using nutritional supplements because of complaints concerning the diagnosis cancer?directly measured
cr12a49q51aDid your diet change because of the support therapy and recovery?directly measured
cr12a49q51bDid you start using nutritional supplements because of the support therapy and recovery?directly measured
cr12a49q52aDid your diet change to prevent the cancer from coming back?directly measured
cr12a49q52bDid you start using nutritional supplements to prevent the cancer from coming back?directly measured
cr12a49q53aDid your diet change because of the other reason? directly measured
cr12a49q53bDid you start using nutritional supplements because of the other reason?directly measured
cr12a49q54Have you received advice on diet and use of supplements after the diagnosis cancer?directly measured
cr12a49q55Did you want such advice?directly measured
cr12a49q57Are you satisfied with the nutritional advice that you got?directly measured
cr12a49q60Do you believe that the (possible) complaints you (might) have, are caused by: colon cancer?directly measured
cr12a49q61Do you believe that the (possible) complaints you (might) have, are caused by: the treatment?directly measured
cr12a49q62Do you believe that the (possible) complaints you (might) have, are caused by: other causes?directly measured

Questions

Questionnaire: Quality of life colon/rectal cancer

The questionnaire was originally conducted in Dutch.

Browse Quality of life colon/rectal cancer

Response Information

Response Overview

The questionnaire was submitted to 1,774 patients of 18 years and older. 1,458 patients completed the questionnaire (response rate 82%),
Collection Events
Period
19-08-2015 to 19-08-2015
Sample
Patients diagnosed with colon or rectal cancer between 2000 and 2009 in the southern region of the Netherlands.
Collection Mode
Mixed-mode survey
Fieldwork Note
A reminder was sent once to the non-respondents.