Quality of life colon/rectal cancer 2010-2014 > Quality of life colon/rectal cancer 2011

Longitudinal Wave

General Information

Title
Quality of life colon/rectal cancer 2011
Project Number
2.1b
Abstract
In 2011 a questionnaire has been composed treating the subjects lifestyle, health related quality of life, health complaints, personality, fatigue, anxiety and depression after the diagnosis colon or rectal cancer. This was the second wave in a longitudinal study.
Longitudinal Type
Longitudinal Wave
Begin date
01-11-2011
End date
28-02-2012
Researcher
Floortje Mols
Publisher
IKNL Profiles study
Copyright
Copyright IKNL Profiles study

Codebooks and other materials

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Codebook in English

Variables

Variable name Variable Label Variable Type
cr11a01pat_idPatient identifierpreloaded
cr11a01responseResponsederived
cr11a01tumorTumor (colon or rectum)preloaded
cr11a01stadkortStagepreloaded
cr11a01gradeGrade of tumorpreloaded
cr11a01ageincAge category at time of diagnosisconstructed
cr11a01agequesAge category at time of studyconstructed
cr11a01yrsdiagTime since diagnosis in categoriesconstructed
cr11a01BMIBody mass indexconstructed
cr11a01treatTreatmentpreloaded
cr11a01t_ses3Social Economic Status status in 3(4) categoriespreloaded
cr11a01gendGenderpreloaded
cr11a01modeQuestionnaire filled in online or on paperderived
cr11a02q01What is currently your marital status?directly measured
cr11a02q02What is your highest education level?directly measured
cr11a06q01Do you have a paid job at this moment?directly measured
cr11a06q02Hours/week working as employeedirectly measured
cr11a06q03Hours/week working as entrepeneurdirectly measured
cr11a06q04If you do not have a paid job, which of the following reasons is most applicable to your situation?directly measured
cr11a06q08Due to cancerdirectly measured
cr11a03q01Do you smoke?directly measured
cr11a03q02How long has it been since you've quit smoking?directly measured
cr11a03q03Number of cigarettes a daydirectly measured
cr11a03q04Number of cigars a daydirectly measured
cr11a03q05Number of packages of pipe tabacco a weekdirectly measured
cr11a03q06Do you drink alcohol?directly measured
cr11a03q07How long has it been since you've quit drinking alcohol?directly measured
cr11a03q08Number of glasses of beer per weekdirectly measured
cr11a03q09Number of glasses of wine or port wine per weekdirectly measured
cr11a03q10Number of glasses of liquor per weekdirectly measured
cr11a04q01Average amount of hours per week going for walks in the summerdirectly measured
cr11a04q02Average amount of hours per week going for walks in the winterdirectly measured
cr11a04q03Average amount of hours per week going for bike rides in the summerdirectly measured
cr11a04q04Average amount of hours per week going for bike rides in the winterdirectly measured
cr11a04q05Average amount of hours per week spending on gardening in the summerdirectly measured
cr11a04q06Average amount of hours per week spending on gardening in the winterdirectly measured
cr11a04q07Average amount of hours per week spending on keeping house in the summerdirectly measured
cr11a04q08Average amount of hours per week spending on keeping house in the winterdirectly measured
cr11a04q09Have you done weekly sporting activities in the past year?directly measured
cr11a05q01How many times did you have contact with your general practitioner in the past 12 months?directly measured
cr11a05q02How many of these contact moments had to do with cancer or the aftermath of cancer?directly measured
cr11a05q03How many times did you have contact with your specialist in the past 12 months?directly measured
cr11a05q04How many of these contact moments had to do with cancer or the aftermath of cancer?directly measured
cr11a05q05Do you still have follow up appointments?directly measured
cr11a05q06Did you discuss with your specialist how often you have to come back from this moment on?directly measured
cr11a05q07Do you feel comfortable with this follow up scheme?directly measured
cr11a05q08Did you receive care after the treatment of your illness?directly measured
cr11a05q09Did you receive care after the treatment of your illness from a psychologist?directly measured
cr11a05q10Did you receive care after the treatment of your illness from a sexologist?directly measured
cr11a05q11Did you receive care after the treatment of your illness from a social worker?directly measured
cr11a05q12Did you receive care after the treatment of your illness from pastoral care?directly measured
cr11a05q13Did you receive care after the treatment of your illness from a general practitioner?directly measured
cr11a05q14Did you receive care after the treatment of your illness from a dietist?directly measured
cr11a05q15Did you receive care after the treatment of your illness from a physiotherapist?directly measured
cr11a05q16Did you receive care after the treatment of your illness from Recovery and Balance (recovery program)directly measured
cr11a05q17Did you receive care after the treatment of your illness from creative therapy?directly measured
cr11a05q18Did you receive care after the treatment of your illness from a oncological nurse?directly measured
cr11a05q19Did you receive care after the treatment of your illness from a peer groupdirectly measured
cr11a05q20Did you receive care after the treatment of your illness from home care?directly measured
cr11a05q21Did you receive care after the treatment of your illness from someone else?directly measured
cr11a07q01Do you have now, or did you have in the past 12 months: heart conditiondirectly measured
cr11a07q15Are you being treated for: heart conditiondirectly measured
cr11a07q29Does the condition interfere with your activities: heart condtiondirectly measured
cr11a07q02Do you have now, or did you have in the past 12 months: strokedirectly measured
cr11a07q16Are you being treated for: strokedirectly measured
cr11a07q30Does the condition interfere with your activities: strokedirectly measured
cr11a07q03Do you have now, or did you have in the past 12 months: high blood pressuredirectly measured
cr11a07q17Are you being treated for: high blood pressuredirectly measured
cr11a07q31Does the condition interfere with your activities: high blood pressuredirectly measured
cr11a07q04Do you have now, or did you have in the past 12 months: asthma, chronic bronchitis, COPDdirectly measured
cr11a07q18Are you being treated for: asthma, chronic bronchitis, COPDdirectly measured
cr11a07q32Does the condition interfere with your activities: asthma, chronic bronchitis, COPDdirectly measured
cr11a07q05Do you have now, or did you have in the past 12 months: diabetesdirectly measured
cr11a07q19Are you being treated for: diabetesdirectly measured
cr11a07q33Does the condition interfere with your activities: diabetesdirectly measured
cr11a07q06Do you have now, or did you have in the past 12 months: ulcerdirectly measured
cr11a07q20Are you being treated for: ulcerdirectly measured
cr11a07q34Does the condition interfere with your activities: ulcerdirectly measured
cr11a07q07Do you have now, or did you have in the past 12 months: kidney diseasedirectly measured
cr11a07q21Are you being treated for: kidney diseasedirectly measured
cr11a07q35Does the condition interfere with your activities: kidney diseasedirectly measured
cr11a07q08Do you have now, or did you have in the past 12 months: liver diseasedirectly measured
cr11a07q22Are you being treated for: liver diseasedirectly measured
cr11a07q36Does the condition interfere with your activities: liver diseasedirectly measured
cr11a07q09Do you have now, or did you have in the past 12 months: anemia or other blood conditiondirectly measured
cr11a07q23Are you being treated for: anemia or other blood conditiondirectly measured
cr11a07q37Does the condition interfere with your activities: anemia or other blood conditiondirectly measured
cr11a07q10Do you have now, or did you have in the past 12 months: thyroid diseasedirectly measured
cr11a07q24Are you being treated for: thyroid diseasedirectly measured
cr11a07q38Does the condition interfere with your activities: thyriod diseasedirectly measured
cr11a07q11Do you have now, or did you have in the past 12 months: depressiondirectly measured
cr11a07q25Are you being treated for: depressiondirectly measured
cr11a07q39Does the condition interfere with your activities: depressiondirectly measured
cr11a07q12Do you have now, or did you have in the past 12 months: arthritisdirectly measured
cr11a07q26Are you being treated for: arthritisdirectly measured
cr11a07q40Does the condition interfere with your activities: arthritisdirectly measured
cr11a07q13Do you have now, or did you have in the past 12 months: backachedirectly measured
cr11a07q27Are you being treated for: backachedirectly measured
cr11a07q41Does the condition interfere with your activities: backachedirectly measured
cr11a07q14Do you have now, or did you have in the past 12 months: rheumatismdirectly measured
cr11a07q28Are you being treated for: rheumatismdirectly measured
cr11a07q42Does the condition interfere with your activities: rheumatismdirectly measured
cr11a07qs1Comorbidity totalderived
cr11a07qs2Comorbidityderived
cr11a47q01Not having clear and concrete goals for your diabetes care?directly measured
cr11a47q02Feeling discouraged with your diabetes treatment plan?directly measured
cr11a47q03Feeling scared when you think about living with diabetes?directly measured
cr11a47q04Uncomfortable social situations related to your diabetes case (e.g., people telling you what to eat)?directly measured
cr11a47q05Feelings of deprivation regarding food and meals?directly measured
cr11a47q06Feeling depressed when you think about living with diabetes?directly measured
cr11a47q07Not knowing if your mood or feelings are related to your diabetes?directly measured
cr11a47q08Feeling overwhelmed by your diabetes?directly measured
cr11a47q09Worrying about low blood sugar reactions?directly measured
cr11a47q10Feeling angry when you think about living with diabetes?directly measured
cr11a47q11Feeling constantly concerned about food and eating?directly measured
cr11a47q12Worrying about the future and the possibility of serious complications?directly measured
cr11a47q13Feelings of guilt or anxiety when you get off track with your diabetes management?directly measured
cr11a47q14Not "accepting" your diabetes?directly measured
cr11a47q15Feeling unsatisfied with your diabetes physician?directly measured
cr11a47q16Feeling that diabetes is taking up too much of your mental and physical energy every day?directly measured
cr11a47q17Feeling alone with your diabetes?directly measured
cr11a47q18Feeling that your friends and family are not supportive of your diabetes management efforts?directly measured
cr11a47q19Coping with complications of diabetes?directly measured
cr11a47q20Feeling "burned out" by the constant effort needed to manage diabetes?directly measured
cr11a47s01PAID totalscorederived
cr11a09q01Do you have any trouble doing strenuous activities, like carrying a heavy shopping bag or a suitcasedirectly measured
cr11a09q02Do you have any trouble taking a long walk?directly measured
cr11a09q03Do you have any trouble taking a short walk outside of the house?directly measured
cr11a09q04Do you need to stay in bed or a chair during the day?directly measured
cr11a09q05Do you need help with eating, dressing, washing yourself or using the toilet?directly measured
cr11a09q06During the past week: Were you limited in doing either your work or other daily activities?directly measured
cr11a09q07During the past week: Were you limited in pursuing your hobbies or other leisure time activities?directly measured
cr11a09q08During the past week: Were you short of breath?directly measured
cr11a09q09During the past week: Have you had pain?directly measured
cr11a09q10During the past week: Did you need to rest?directly measured
cr11a09q11During the past week: Have you had trouble sleeping?directly measured
cr11a09q12During the past week: Have you felt weak?directly measured
cr11a09q13During the past week: Have you lacked appetite?directly measured
cr11a09q14During the past week: Have you felt nauseated?directly measured
cr11a09q15During the past week: Have you vomited?directly measured
cr11a09q16During the past week: Have you been constipated?directly measured
cr11a09q17During the past week: Have you had diarrhea?directly measured
cr11a09q18During the past week: Were you tired?directly measured
cr11a09q19During the past week: Did pain interfere with your daily activities?directly measured
cr11a09q20During the past week: Have you had difficulty in concentrating on things, like reading a newspaper or watching televisiodirectly measured
cr11a09q21During the past week: Did you feel tense?directly measured
cr11a09q22During the past week: Did you worry?directly measured
cr11a09q23During the past week: Did you feel irritable?directly measured
cr11a09q24During the past week: Did you feel depressed?directly measured
cr11a09q25During the past week: Have you had difficulty remembering things?directly measured
cr11a09q26During the past week: Has your physical condition or medical treatment interfered with your family life?directly measured
cr11a09q27During the past week: Has your physical condition or medical treatment interfered with your social activities?directly measured
cr11a09q28During the past week: Has your physical condition or medical treatment caused you financial difficulties?directly measured
cr11a09q29How would you rate your overall health during the past week?directly measured
cr11a09q30How would you rate your overall quality of life during the past week?directly measured
cr11a09s01Physical Functioningderived
cr11a09s02Role Functioningderived
cr11a09s03Emotional Functioningderived
cr11a09s04Cognitive Functioningderived
cr11a09s05Social Functioningderived
cr11a09s06Global health status / QoLderived
cr11a09s07Fatiguederived
cr11a09s08Nausea / Vomitingderived
cr11a09s09Painderived
cr11a09s10Dyspnoeaderived
cr11a09s11Insomniaderived
cr11a09s12Appetite lossderived
cr11a09s13Constipationderived
cr11a09s14Diarhoeaderived
cr11a09s15Financial Problemsderived
cr11a10q01During the past week: Did you urinate frequently during the day?directly measured
cr11a10q02During the past week: Did you urinate frequently during the night?directly measured
cr11a10q03During the past week: Did you have pain when you urinated?directly measured
cr11a10q04During the past week: Did you have a bloated feeling in your abdomen?directly measured
cr11a10q05During the past week: Did you have abdominal pain?directly measured
cr11a10q06During the past week: Did you have pain in your buttocks?directly measured
cr11a10q07During the past week: Did you suffer from gas (flatulence)?directly measured
cr11a10q08During the past week: Did you have indigestions?directly measured
cr11a10q09During the past week: Have you lost weight?directly measured
cr11a10q10During the past week: Did you have a dry mouth?directly measured
cr11a10q11During the past week: Have you had thin or dull hair because of your illness or treatment?directly measured
cr11a10q12During the past week: Did food and drink taste different than usual?directly measured
cr11a10q13During the past week: Have you felt physically less attractive as a result of your disease or treatment?directly measured
cr11a10q14During the past week: Have you been feeling less feminine/masculine as a result of your disease or treatment?directly measured
cr11a10q15During the past week: Have you been dissatisfied with your body?directly measured
cr11a10q16During the past week: Were you worried about your health in the future?directly measured
cr11a10q17To what extent were you interested in sex?directly measured
cr11a10q18To what extent were you sexually active (with or without intercourse)?directly measured
cr11a10q19Answer only if you were sexually active: To what extent was sex enjoyable for you?directly measured
cr11a10q20Did you have difficulty getting an erection?directly measured
cr11a10q21Did you have any trouble getting an ejaculation (e.g. so-called dry orgasm)?directly measured
cr11a10q22Did you have a dry vagina during intercourse?directly measured
cr11a10q23Did you have pain during intercourse?directly measured
cr11a10q24Do you have a stoma (colostomy bag)?directly measured
cr11a10q25During the past week: Were you afraid that other people would be able to hear your stoma?directly measured
cr11a10q26During the past week: Were you afraid that other people would be able to smell your stools?directly measured
cr11a10q27During the past week: Were you worried about possible leakage from the stoma bag?directly measured
cr11a10q28During the past week: Did you have problems with caring for your stoma?directly measured
cr11a10q29During the past week:Was your skin around the stoma irritated?directly measured
cr11a10q30During the past week: Did you feel embarassed because of your stoma?directly measured
cr11a10q31During the past week: Did you feel less complete because of your stoma?directly measured
cr11a10q32During the past week: Did you have frequent bowel movements during the day?directly measured
cr11a10q33During the past week: Did you have frequent bowel movements during the night?directly measured
cr11a10q34During the past week: Have you had false urge (urge without defecation)?directly measured
cr11a10q35During the past week: Have you had any unintentional release of stools?directly measured
cr11a10q36During the past week: Have you had blood with your stools?directly measured
cr11a10q37During the past week: Do you have difficulties with defecating?directly measured
cr11a10q38During the past week: Do you have pain when defecating?directly measured
cr11a10q42Did frequent bag changes occur during the day?directly measured
cr11a10q43Did frequent bag changes occur during the night?directly measured
cr11a10q45Did you have slime/mucus in your stools?directly measured
cr11a10q46Have you had sore skin around your anal zone?directly measured
cr11a10q47Did you feel hampered by your bowel movement?directly measured
cr11a10s01Body imagederived
cr11a10s02Future perspectivederived
cr11a10s03Sexual functioningderived
cr11a10s04Sexual enjoymentderived
cr11a10s05Micturition problemsderived
cr11a10s06Chemotherapy side effectsderived
cr11a10s07Gastrointestinal problemsderived
cr11a10s08Male sexual problemsderived
cr11a10s09Female sexual problemsderived
cr11a10s10Defecation problemsderived
cr11a10s11Stoma-related problemsderived
cr11a10s12Weight lossderived
cr11a42q01Did you have tingling fingers or hands?directly measured
cr11a42q02Did you have tingling toes or feet?directly measured
cr11a42q03Did you have numbness in your fingers or hands?directly measured
cr11a42q04Did you have numbness in your toes or feet?directly measured
cr11a42q05Did you have shooting or burning pain in your fingers or hands?directly measured
cr11a42q06Did you have shooting or burning pain in your toes or feet?directly measured
cr11a42q07Did you have cramps in your hands?directly measured
cr11a42q08Did you have cramps in your feet?directly measured
cr11a42q09Did you have problems standing or walking because of difficulty feeling the ground under your feet?directly measured
cr11a42q10Did you have difficulty distinguishing between hot and cold water?directly measured
cr11a42q11Did you have a problem holding a pen, which made writing difficult?directly measured
cr11a42q12Did you have difficulty manipulating small objects with your fingers (for example, fastening small buttons)?directly measured
cr11a42q13Did you have difficulty opening a jar or bottle because of weakness in your hands?directly measured
cr11a42q14Did you have difficulty walking because your feet dropped downwards?directly measured
cr11a42q15Did you have difficulty climbing stairs or getting up out of a chair because of weakness in your legs?directly measured
cr11a42q16Were you dizzy when standing up from a sitting or lying position?directly measured
cr11a42q17Did you have blurred vision?directly measured
cr11a42q18Did you have difficulty hearing?directly measured
cr11a42q19Please answer the following question only if you drive a car: Did you have difficulty using the pedals?directly measured
cr11a42q20Please answer the following question only if you are a man: Did you have difficulty getting or maintaining an erection?directly measured
cr11a42s01Sensory scalederived
cr11a42s02Motor scalederived
cr11a42s03Autonomic scalederived
cr11a44q01How much have your symptoms interfered with your general activity in the last week?directly measured
cr11a44q02How much have your symptoms interfered with your mood in the last week?directly measured
cr11a44q03How much have your symptoms interfered with your work (including work around the house) in the last week?directly measured
cr11a44q04How much have your symptoms interfered with your relations with other people in the last week?directly measured
cr11a44q05How much have your symptoms interfered with your walking in the last week?directly measured
cr11a44q06How much have your symptoms interfered with your enjoyment of life in the last week?directly measured
cr11a44s01Total score MDASIderived
cr11a21q01I make contact easily when I meet people.directly measured
cr11a21q02I often make a fuss about unimportant things.directly measured
cr11a21q03I often talk to strangers.directly measured
cr11a21q04I often feel unhappydirectly measured
cr11a21q05I am often irritated.directly measured
cr11a21q06I often feel inhibited in social interactions.directly measured
cr11a21q07I take a gloomy view on things.directly measured
cr11a21q08I find it hard to start a conversation.directly measured
cr11a21q09I am often in a bad mood.directly measured
cr11a21q10I am a closed kind of person.directly measured
cr11a21q11I would rather keep other people at a distance.directly measured
cr11a21q12I often find myself worrying about something.directly measured
cr11a21q13I am often down in the dumps.directly measured
cr11a21q14When socializing, I don’t find the right things to talk about.directly measured
cr11a21s01Negative affectionderived
cr11a21s02Social inhibitionderived
cr11a21s03Type d personalityderived
cr11a23q01I am bothered by fatiguedirectly measured
cr11a23q02I get tired very quicklydirectly measured
cr11a23q03I don’t do much during the daydirectly measured
cr11a23q04I have enough energy for everyday lifedirectly measured
cr11a23q05Physically, I feel exhausteddirectly measured
cr11a23q06I have problems starting thingsdirectly measured
cr11a23q07I have problems thinking clearlydirectly measured
cr11a23q08I feel no desire to do anythingdirectly measured
cr11a23q09Mentally, I feel exhausteddirectly measured
cr11a23q10When I am doing something, I can concentrate quite welldirectly measured
cr11a23s03FAS totalderived
cr11a24q01I feel tense or 'wound' updirectly measured
cr11a24q02I still enjoy the things I used to enjoydirectly measured
cr11a24q03I get a sort of frightened feeling as if something awful is about to happendirectly measured
cr11a24q04I can laugh and see the funny side of thingsdirectly measured
cr11a24q05Worrying thoughts go through my minddirectly measured
cr11a24q06I feel cheerfuldirectly measured
cr11a24q07I can sit at ease and feel relaxeddirectly measured
cr11a24q08I feel as if I am slowed downdirectly measured
cr11a24q09I get a sort of frightened feeling like \'butterflies\' in the stomachdirectly measured
cr11a24q10I have lost interest in my appearancedirectly measured
cr11a24q11I feel restless, as if I have to be on the movedirectly measured
cr11a24q12I look forward with enjoyment to thingsdirectly measured
cr11a24q13I get sudden feelings of panicdirectly measured
cr11a24q14I can enjoy a good book or radio or TV programdirectly measured
cr11a24s01HADS anxietyderived
cr11a24s02HADS depressionderived
cr11a35q01How often does someone help your with reading letters or brochures from your general practitioner, the hospital or otherdirectly measured
cr11a35q02How sure are you that you fill in your medical forms correctly?directly measured
cr11a35q03How often is it hard for you to get to know more about your health, because you don\'t understand that written informatiodirectly measured

Questions

Questionnaire: Quality of life colon/rectal cancer

The questionnaire was originally conducted in Dutch.

Browse Quality of life colon/rectal cancer

Response Information

Response Overview
The questionnaire was submitted to 1,981 patients of 18 years and older. 1,643 patients completed the questionnaire (reponse rate 83%).
Collection Events
Period
01-12-2011 to 31-03-2012
Sample
Patients diagnosed with colon or rectal cancer between 2000 and 2009 in the southern region of the Netherlands
Collection Mode
Mixed-mode survey
Fieldwork Note
A reminder was sent once to the non-respondents