Quality of life colon/rectal cancer 2010-2014 > Quality of life colon/rectal cancer 2010

Longitudinal Wave

General Information

Title
Quality of life colon/rectal cancer 2010
Project Number
2.1a
Abstract
In 2010 a questionnaire has been composed treating the subjects lifestyle, health related quality of life, health complaints, personality, fatigue, anxiety and depression after the diagnosis colon or rectal cancer. This was the first wave in a longitudinal study.
Longitudinal Type
Longitudinal Wave
Begin date
16-11-2010
End date
30-06-2011
Researcher
Floortje Mols
Publisher
IKNL Profiles study
Copyright
Copyright IKNL Profiles study

Codebooks and other materials

View Documentation

Five waves of questionnaires on quality of life were sent to patiënts diagnosed with colon/rectal cancer between 2000 and 2009 in the Southern part of the Netherlands. This flowchart shows the flow of patients troughout wave 1, 2, 3, 4 and 5.
Codebook in English

Variables

Variable name Variable Label Variable Type
cr10a01pat_idPatient identifierpreloaded
cr10a01responseResponse statusderived
cr10a01gendGenderpreloaded
cr10a01tumor1=colon, 2=rectalpreloaded
cr10a01yrsdiagTime since diagnosis in categoriesconstructed
cr10a01ageincAge categories at time of diagnosisconstructed
cr10a01agequesAge categories at time of questionnaireconstructed
cr10a01t_ses3Social Economic Status in 3(4) categoriespreloaded
cr10a01BMIBody Mass Indexderived
cr10a01gradeTumor differentiation gradepreloaded
cr10a01stageStagepreloaded
cr10a01treatReceived primary treatmentpreloaded
cr10a01modeWas the questionaire filled in online or on paper?derived
cr10a02q01What is currently your marital status?directly measured
cr10a02q02What is the highest education level that you have completed?directly measured
cr10a06q01Do you have a paid job at this moment?directly measured
cr10a06q02Paid job hours/weekdirectly measured
cr10a06q06If you do not have a paid job, which of the following reasons is most applicable to your situation?directly measured
cr10a06q08Disabililty percentagedirectly measured
cr10a06q09Due to cancerdirectly measured
cr10a03q01Do you smoke?directly measured
cr10a03q02How long has it been since you've quit smoking?directly measured
cr10a03q03Number of cigarettes a daydirectly measured
cr10a03q04Number of cigars a daydirectly measured
cr10a03q05Number of packages of pipe tabacco a weekdirectly measured
cr10a03q06Can you state how many glasses of alcoholic beverages you drank on average per week in de past 12 months?directly measured
cr10a03q07How long has it been since you've quit drinking alcohol?directly measured
cr10a03q08Number of glasses of beer per weekdirectly measured
cr10a03q09Number of glasses of wine or port wine per weekdirectly measured
cr10a03q10Number of glasses of liquor per weekdirectly measured
cr10a04q01Average amount of hours per week going for walks in the summerdirectly measured
cr10a04q02Average amount of hours per week going for walks in the winterdirectly measured
cr10a04q03Average amount of hours per week going for bike rides in the summerdirectly measured
cr10a04q04Average amount of hours per week going for bike rides in the winterdirectly measured
cr10a04q05Average amount of hours per week spending on gardening in the summerdirectly measured
cr10a04q06Average amount of hours per week spending on gardening in the winterdirectly measured
cr10a04q07Average amount of hours per week spending on keeping house in the summerdirectly measured
cr10a04q08Average amount of hours per week spending on keeping house in the winterdirectly measured
cr10a04q09Have you done weekly sporting activities in the past year?directly measured
cr10a05q01How many times did you have contact with your general practitioner in the past 12 months?directly measured
cr10a05q02How many of these contact moments had to do with cancer or the aftermath of cancer?directly measured
cr10a05q03How many times did you have contact with your specialist in the past 12 months?directly measured
cr10a05q04How many of these contact moments had to do with cancer or the aftermath of cancer?directly measured
cr10a05q05Do you still have follow up appointments?directly measured
cr10a05q06Did you discuss with your specialist how often you have to come back from this moment on?directly measured
cr10a05q07Do you feel comfortable with this follow up scheme?directly measured
cr10a05q08Did you receive care after the treatment of your illness?directly measured
cr10a05q09Did you receive care after the treatment of your illness from a psychologist?directly measured
cr10a05q10Did you receive care after the treatment of your illness from a sexologist?directly measured
cr10a05q11Did you receive care after the treatment of your illness from a social worker?directly measured
cr10a05q12Did you receive care after the treatment of your illness from pastoral care?directly measured
cr10a05q13Did you receive care after the treatment of your illness from a general practitioner?directly measured
cr10a05q14Did you receive care after the treatment of your illness from a dietist?directly measured
cr10a05q15Did you receive care after the treatment of your illness from a physiotherapist?directly measured
cr10a05q16Did you receive care after the treatment of your illness from Recovery and Balance (recovery program)directly measured
cr10a05q17Did you receive care after the treatment of your illness from creative therapy?directly measured
cr10a05q18Did you receive care after the treatment of your illness from an oncological nurse?directly measured
cr10a05q19Did you receive care after the treatment of your illness from a peer groupdirectly measured
cr10a05q20Did you receive care after the treatment of your illness from someone else?directly measured
cr10a07q01Do you have now, or did you have in the past 12 months: heart conditiondirectly measured
cr10a07q21Are you being treated for: heart conditiondirectly measured
cr10a07q38Does the condition interfere with your activities: heart condtiondirectly measured
cr10a07q02Do you have now, or did you have in the past 12 months: strokedirectly measured
cr10a07q22Are you being treated for: strokedirectly measured
cr10a07q39Does the condition interfere with your activities: strokedirectly measured
cr10a07q03Do you have now, or did you have in the past 12 months: high blood pressuredirectly measured
cr10a07q23Are you being treated for: high blood pressuredirectly measured
cr10a07q40Does the condition interfere with your activities: high blood pressuredirectly measured
cr10a07q04Do you have now, or did you have in the past 12 months: asthma, chronic bronchitis, COPDdirectly measured
cr10a07q24Are you being treated for: asthma, chronic bronchitis, COPDdirectly measured
cr10a07q41Does the condition interfere with your activities: asthma, chronic bronchitis, COPDdirectly measured
cr10a07q05Do you have now, or did you have in the past 12 months: diabetesdirectly measured
cr10a07q25Are you being treated for: diabetesdirectly measured
cr10a07q42Does the condition interfere with your activities: diabetesdirectly measured
cr10a07q06Do you have now, or did you have in the past 12 months: ulcerdirectly measured
cr10a07q26Are you being treated for: ulcerdirectly measured
cr10a07q43Does the condition interfere with your activities: ulcerdirectly measured
cr10a07q07Do you have now, or did you have in the past 12 months: kidney diseasedirectly measured
cr10a07q27Are you being treated for: kidney diseasedirectly measured
cr10a07q44Does the condition interfere with your activities: kidney diseasedirectly measured
cr10a07q08Do you have now, or did you have in the past 12 months: liver diseasedirectly measured
cr10a07q28Are you being treated for: liver diseasedirectly measured
cr10a07q45Does the condition interfere with your activities: liver diseasedirectly measured
cr10a07q09Do you have now, or did you have in the past 12 months: anemia or other blood conditiondirectly measured
cr10a07q29Are you being treated for: anemia or other blood conditiondirectly measured
cr10a07q46Does the condition interfere with your activities: anemia or other blood conditiondirectly measured
cr10a07q10Do you have now, or did you have in the past 12 months: thyroid diseasedirectly measured
cr10a07q47Does the condition interfere with your activities: thyriod diseasedirectly measured
cr10a07q30Are you being treated for: thyroid diseasedirectly measured
cr10a07q11Do you have now, or did you have in the past 12 months: depressiondirectly measured
cr10a07q31Are you being treated for: depressiondirectly measured
cr10a07q48Does the condition interfere with your activities: depressiondirectly measured
cr10a07q12Do you have now, or did you have in the past 12 months: arthritisdirectly measured
cr10a07q32Are you being treated for: arthritisdirectly measured
cr10a07q49Does the condition interfere with your activities: arthritisdirectly measured
cr10a07q13Do you have now, or did you have in the past 12 months: backachedirectly measured
cr10a07q33Are you being treated for: backachedirectly measured
cr10a07q50Does the condition interfere with your activities: backachedirectly measured
cr10a07q14Do you have now, or did you have in the past 12 months: rheumatismdirectly measured
cr10a07q34Are you being treated for: rheumatismdirectly measured
cr10a07q51Does the condition interfere with your activities: rheumatismdirectly measured
cr10a07s01Total number of comorbid condiitonsderived
cr10a07s02number of comorbid conditionsderived
cr10a07s03Sum score of SCQderived
cr10a47q01Not having clear and concrete goals for your diabetes care?directly measured
cr10a47q02Feeling discouraged with your diabetes treatment plan?directly measured
cr10a47q03Feeling scared when you think about living with diabetes?directly measured
cr10a47q04Uncomfortable social situations related to your diabetes care (e.g., people telling you what to eat)?directly measured
cr10a47q05Feelings of deprivation regarding food and meals?directly measured
cr10a47q06Feeling depressed when you think about living with diabetes?directly measured
cr10a47q07Not knowing if your mood or feelings are related to your diabetes?directly measured
cr10a47q08Feeling overwhelmed by your diabetes?directly measured
cr10a47q09Worrying about low blood sugar reactions?directly measured
cr10a47q10Feeling angry when you think about living with diabetes?directly measured
cr10a47q11Feeling constantly concerned about food and eating?directly measured
cr10a47q12Worrying about the future and the possibility of serious complications?directly measured
cr10a47q13Feelings of guilt or anxiety when you get off track with your diabetes management?directly measured
cr10a47q14Not "accepting" your diabetes?directly measured
cr10a47q15Feeling unsatisfied with your diabetes physician?directly measured
cr10a47q16Feeling that diabetes is taking up too much of your mental and physical energy every day?directly measured
cr10a47q17Feeling alone with your diabetes?directly measured
cr10a47q18Feeling that your friends and family are not supportive of your diabetes management efforts?directly measured
cr10a47q19Coping with complications of diabetes?directly measured
cr10a47q20Feeling "burned out" by the constant effort needed to manage diabetes?directly measured
cr10a47s01Paid - total scorederived
cr10a09q01Do you have any trouble doing strenuous activities, like carrying a heavy shopping bag or a suitcasedirectly measured
cr10a09q02Do you have any trouble taking a long walk?directly measured
cr10a09q03Do you have any trouble taking a short walk outside of the house?directly measured
cr10a09q04Do you need to stay in bed or a chair during the day?directly measured
cr10a09q05Do you need help with eating, dressing, washing yourself or using the toilet?directly measured
cr10a09q06During the past week: Were you limited in doing either your work or other daily activities?directly measured
cr10a09q07During the past week: Were you limited in pursuing your hobbies or other leisure time activities?directly measured
cr10a09q08During the past week: Were you short of breath?directly measured
cr10a09q09During the past week: Have you had pain?directly measured
cr10a09q10During the past week: Did you need to rest?directly measured
cr10a09q11During the past week: Have you had trouble sleeping?directly measured
cr10a09q12During the past week: Have you felt weak?directly measured
cr10a09q13During the past week: Have you lacked appetite?directly measured
cr10a09q14During the past week: Have you felt nauseated?directly measured
cr10a09q15During the past week: Have you vomited?directly measured
cr10a09q16During the past week: Have you been constipated?directly measured
cr10a09q17During the past week: Have you had diarrhea?directly measured
cr10a09q18During the past week: Were you tired?directly measured
cr10a09q19During the past week: Did pain interfere with your daily activities?directly measured
cr10a09q20During the past week: Have you had difficulty in concentrating on things, like reading a newspaper or watching televisiodirectly measured
cr10a09q21During the past week: Did you feel tense?directly measured
cr10a09q22During the past week: Did you worry?directly measured
cr10a09q23During the past week: Did you feel irritable?directly measured
cr10a09q24During the past week: Did you feel depressed?directly measured
cr10a09q25During the past week: Have you had difficulty remembering things?directly measured
cr10a09q26During the past week: Has your physical condition or medical treatment interfered with your family life?directly measured
cr10a09q27During the past week: Has your physical condition or medical treatment interfered with your social activities?directly measured
cr10a09q28During the past week: Has your physical condition or medical treatment caused you financial difficulties?directly measured
cr10a09q29How would you rate your overall health during the past week?directly measured
cr10a09q30How would you rate your overall quality of life during the past week?directly measured
cr10a09s01Physical Functioningderived
cr10a09s02Role Functioningderived
cr10a09s03Emotional Functioningderived
cr10a09s04Cognitive Functioningderived
cr10a09s05Social Functioningderived
cr10a09s06Global health status / QoLderived
cr10a09s07Fatiguederived
cr10a09s08Nausea / Vomitingderived
cr10a09s09Painderived
cr10a09s10Dyspnoeaderived
cr10a09s11Insomniaderived
cr10a09s12Appetite lossderived
cr10a09s13Constipationderived
cr10a09s14Diarhoeaderived
cr10a09s15Financial Problemsderived
cr10a10q01During the past week: Did you urinate frequently during the day?directly measured
cr10a10q02During the past week: Did you urinate frequently during the night?directly measured
cr10a10q03During the past week: Did you have pain when you urinated?directly measured
cr10a10q04During the past week: Did you have a bloated feeling in your abdomen?directly measured
cr10a10q05During the past week: Did you have abdominal pain?directly measured
cr10a10q06During the past week: Did you have pain in your buttocks?directly measured
cr10a10q07During the past week: Did you suffer from gas (flatulence)?directly measured
cr10a10q08During the past week: Did you have indigestions?directly measured
cr10a10q09During the past week: Have you lost weight?directly measured
cr10a10q10During the past week: Did you have a dry mouth?directly measured
cr10a10q11During the past week: Have you had thin or dull hair because of your illness or treatment?directly measured
cr10a10q12During the past week: Did food and drink taste different than usual?directly measured
cr10a10q13During the past week: Have you felt physically less attractive as a result of your disease or treatment?directly measured
cr10a10q14During the past week: Have you been feeling less feminine/masculine as a result of your disease or treatment?directly measured
cr10a10q15During the past week: Have you been dissatisfied with your body?directly measured
cr10a10q16During the past week: Were you worried about your health in the future?directly measured
cr10a10q17To what extent were you interested in sex?directly measured
cr10a10q18To what extent were you sexually active (with or without intercourse)?directly measured
cr10a10q19Answer only if you were sexually active: To what extent was sex enjoyable for you?directly measured
cr10a10q20Did you have difficulty getting an erection?directly measured
cr10a10q21Did you have any trouble getting an ejaculation (e.g. so-called dry orgasm)?directly measured
cr10a10q22Did you have a dry vagina during intercourse?directly measured
cr10a10q23Did you have pain during intercourse?directly measured
cr10a10q24Do you have a stoma (colostomy bag)?directly measured
cr10a10q25During the past week: Were you afraid that other people would be able to hear your stoma?directly measured
cr10a10q26During the past week: Were you afraid that other people would be able to smell your stools?directly measured
cr10a10q27During the past week: Were you worried about possible leakage from the stoma bag?directly measured
cr10a10q28During the past week: Did you have problems with caring for your stoma?directly measured
cr10a10q29During the past week: Was your skin around the stoma irritated?directly measured
cr10a10q30During the past week: Did you feel embarassed because of your stoma?directly measured
cr10a10q31During the past week: Did you feel less complete because of your stoma?directly measured
cr10a10q32During the past week: Did you have frequent bowel movements during the daydirectly measured
cr10a10q33During the past week: Did you have frequent bowel movements during the night?directly measured
cr10a10q34During the past week: Did you feel the urge to move your bowels without actually producing any stools?directly measured
cr10a10q35During the past week: Have you had any unintentional release of stools?directly measured
cr10a10q36During the past week: Have you had blood with your stools?directly measured
cr10a10q37During the past week: Have you had difficulty in moving your bowels?directly measured
cr10a10q38During the past week: Have your bowel movements been painful?directly measured
cr10a10q39Have you had intercourse during the past 4 weeks?directly measured
cr10a10q40Which situation discribes your stoma best?directly measured
cr10a10q41How many months did you have your temporary stoma before it was closed?directly measured
cr10a10q42During the past week: Did frequent bag changes occur during the day?directly measured
cr10a10q43During the past week: Did frequent bag changes occur during the night?directly measured
cr10a10q45During the past week: Did you have slime/mucus in your stools?directly measured
cr10a10q46During the past week: Have you had sore skin around your anal zone?directly measured
cr10a10q47During the past week: Did you feel hampered by your bowel movement?directly measured
cr10a10s01Body imagederived
cr10a10s02Future perspectivederived
cr10a10s03Sexual functioningderived
cr10a10s04Sexual enjoymentderived
cr10a10s05Micturition problemsderived
cr10a10s06Chemotherapy side effectsderived
cr10a10s07Gastrointestinal problemsderived
cr10a10s08Male sexual problemsderived
cr10a10s09Female sexual problemsderived
cr10a10s10Defecation problemsderived
cr10a10s11Stoma-related problemsderived
cr10a10s12Weight lossderived
cr10a18q01In general, how would you say your health is?directly measured
cr10a18q02Does your health now limit you in these activities: Moderate activities, such as moving a table, pushing a vacuum cleanedirectly measured
cr10a18q03Does your health now limit you in these activities: Climbing several flights of stairsdirectly measured
cr10a18q04During the past 4 weeks, as a result of your physical health, did you have any of the following problems: Accomplished ldirectly measured
cr10a18q05During the past 4 weeks, as a result of your physical health, did you have any of the following problems: Were limited idirectly measured
cr10a18q06During the past 4 weeks, as a result of emotional problems, did you have any of the following problems: Accomplished lesdirectly measured
cr10a18q07During the past 4 weeks, as a result of emotional problems, did you have any of the following problems: Didn’t do work odirectly measured
cr10a18q08During the past 4 weeks, how much did pain interfere with your normal work (including both work outside the home and houdirectly measured
cr10a18q09How much of the time during the past 4 weeks: Have you felt calm and peaceful?directly measured
cr10a18q10How much of the time during the past 4 weeks: Did you have a lot of energy?directly measured
cr10a18q11How much of the time during the past 4 weeks: Have you felt downhearted and blue?directly measured
cr10a18q12During the past 4 weeks, how much of the time has your physical health or emotional problems interfered with your socialdirectly measured
cr10a18s01SF12 - Physical component scorederived
cr10a18s02SF12 - Mental component scorederived
cr10a22q01How much does your illness affect your life?directly measured
cr10a22q02How long do you think your illness will continue?directly measured
cr10a22q03How much control do you feel you have over your illness?directly measured
cr10a22q04How much do you think your treatment can help your illness?directly measured
cr10a22q05How much do you experience symptoms from your illness?directly measured
cr10a22q06How concerned are you about your illness?directly measured
cr10a22q07How well do you feel you understand your illness?directly measured
cr10a22q08How much does your illness affect you emotionally? (e.g. does it make you angry, scared, upset or depressed?directly measured
cr10a23q01I am bothered by fatiguedirectly measured
cr10a23q02I get tired very quicklydirectly measured
cr10a23q03I don’t do much during the daydirectly measured
cr10a23q04I have enough energy for everyday lifedirectly measured
cr10a23q05Physically, I feel exhausteddirectly measured
cr10a23q06I have problems starting thingsdirectly measured
cr10a23q07I have problems thinking clearlydirectly measured
cr10a23q08I feel no desire to do anythingdirectly measured
cr10a23q09Mentally, I feel exhausteddirectly measured
cr10a23q10When I am doing something, I can concentrate quite welldirectly measured
cr10a23s03FAS totalderived
cr10a24q01I feel tense or 'wound' updirectly measured
cr10a24q02I get a sort of frightened feeling as if something awful is about to happendirectly measured
cr10a24q03Worrying thoughts go through my minddirectly measured
cr10a24q04I feel cheerfuldirectly measured
cr10a24q05I feel as if I am slowed downdirectly measured
cr10a24q06I have lost interest in my appearancedirectly measured
cr10a24q07I feel restless, as if I have to be on the movedirectly measured
cr10a24q08I get sudden feelings of panicdirectly measured
cr10a24q09I still enjoy the things I used to enjoydirectly measured
cr10a24q10I can laugh and see the funny side of thingsdirectly measured
cr10a24q11I can sit at ease and feel relaxeddirectly measured
cr10a24q12I get a sort of frightened feeling like 'butterflies' in the stomachdirectly measured
cr10a24q13I look forward with enjoyment to thingsdirectly measured
cr10a24q14I can enjoy a good book or radio or TV programdirectly measured
cr10a24s01HADS - Anxietyderived
cr10a24s02HADS - Depressionderived
cr10a21q01I easily make contact when I meet peopledirectly measured
cr10a21q02I often make a fuss about unimportant thingsdirectly measured
cr10a21q03I often talk to strangersdirectly measured
cr10a21q04I often feel unhappydirectly measured
cr10a21q05I am often irritateddirectly measured
cr10a21q06I often feel inhibited in social interactionsdirectly measured
cr10a21q07I take a gloomy view on thingsdirectly measured
cr10a21q08I find it hard to start a conversationdirectly measured
cr10a21q09I am often in a bad mooddirectly measured
cr10a21q10I am a closed kind of persondirectly measured
cr10a21q11I would rather keep other people at a distancedirectly measured
cr10a21q12I often find myself worrying about somethingdirectly measured
cr10a21q13I am often down in the dumpsdirectly measured
cr10a21q14When socializing, I don’t find the right things to talk aboutdirectly measured
cr10a21s01negative affectionderived
cr10a21s02social inhibitionderived
cr10a21s03Type d dichotoomderived

Questions

Questionnaire: Quality of life colon/rectal cancer

The questionnaire was originally conducted in Dutch.

Browse Quality of life colon/rectal cancer

Response Information

Response Overview

The questionnaire was submitted to 3.585 patients of 18 years and older. 2.625 patients completed the questionnaire (reponse rate 73%).


Collection Events
Period
16-11-2010 to 30-06-2011
Sample
Patients diagnosed with colon or rectal cancer between 2000 and 2009 in the southern region of the Netherlands
Collection Mode
Mixed-mode survey